Spina Bifida

A Tube of Toothpaste

By pwsadmin / October 2, 2022 /

Remember being ten years old? I do.I remember that all ten-year-olds are “Big Boys,” and all ten-year-olds should no longer wear a diaper. At ten, I was already embarrassed about having to wear a diaper.I knew my friends no longer wore diapers, and I felt I was less of a man since I had to…

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Spina Bifida Awareness Month

By pwsadmin / October 2, 2022 /

The Month of October is Spina Bifida Awareness Month. I would typically post personal stories of my struggles with Spina Bifida and how it has affected my life, on my private Facebook Page. But now I have this page. And that is exactly what I created this page for. So, for October, I’ll post a…

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Dr. Morgan

By pwsadmin / September 26, 2022 /

“You’ve got to drink something, Dang it! Do you not see that we are trying to keep you alive?! I don’t care if you drink Sweet Tea, Water, Mountain Dew, or what! You’ve got to take in fluids, or your Kidneys are going to shut down!” “Boy, I’ve really ticked him off this time,” I…

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Prep Before Procedure

By pwsadmin / September 22, 2022 /

I’ve done my “Prep” work that I do before every Procedure. For one, I straighten my room, so it’s clean when I come home.I also have other reasons for cleaning my room before every Procedure, and I’ll keep that to myself. But you could probably put it together. Then, I Sanitize my whole body. Yep.…

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By pwsadmin / September 21, 2022 /

Pre-Registration called me today to get me ready for my Procedure this Thursday. While talking about my Colostomy and Urostomy, I informed the sweet lady that they are named “Lenny” and “Squiggy,” respectively.She laughed and said, “I’ve Pre-Registered you before. I remember those names!”We both giggled. She then reminded me that even though it’s an…

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By pwsadmin / September 20, 2022 /

I walked into the Doc’s Office today around 2:30 pm. My appointment being at 3:30, I knew I’d be sitting a while. So, I looked the Waiting Room chairs over. Two leather chairs appearing to be comfortable, and one hardback chair appearing not to be so comfortable. Out of the two comfortable-looking chairs, I decide…

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Thought For The Day

By pwsadmin / September 13, 2022 / Comments Off on Thought For The Day

—Thought for the day— I’ve been going through Journals and Stories I’ve written over the years because I’m slowly writing a book and have to decide what to put in and what to leave out. One thing I’ve noticed is that I, like you, am trying my best to navigate my way thru life. To…

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Never Hop A Train

By pwsadmin / September 5, 2022 / Comments Off on Never Hop A Train

—Never Ever Hop A Train— Growing up, we lived right next to the train tracks.“Seaboard System Railroad” and “CSX” ran by our house twelve times every twenty-four hours. I may be off a little on that. Now, you might think that a ten-year-old boy born with Spina Bifida wouldn’t be able to “Hop” trains. You’d…

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Medical Update

By pwsadmin / August 30, 2022 / Comments Off on Medical Update

—To All Who Keep Up With My Health— I got an Ultra Sound on my Kidneys today to see how they are doing. My Kidneys have Hydronephrosis. It’s usually something that can get fixed, but in my situation, I have to live with it.As long as it doesn’t get worse, I’m okay. So, I get…

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Feeling – The Furnace Grate Story

By pwsadmin / August 12, 2022 / Comments Off on Feeling – The Furnace Grate Story

1978I was Three Years Old.Now, I don’t remember any of this. As I said, I was three.I’ve heard this story all of my life, though. I was developing normally for a kid with Spina Bifida.I had even begun walking at the time normal kids started walking.Yep, everything looked good except for one thing: I couldn’t…

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