Spina Bifida

Sick 10/13/2021

By pwsadmin / October 14, 2021 /

—Sick 10/13/2021— I became sick today. My stomach was torn up, and I was cold and shaky. When this happens, my output, both 1 and 2, is very acidic.The acid then tries to eat through my wafer, which is holding my bags, and, much like a river trying to forge a new path, the output…

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Stress Test 10/12/2021

By pwsadmin / October 13, 2021 /

—To All Who Keep Up With My Health— I had my stress test done on my heart yesterday.I also had an Echo Cardiogram performed as well. I was at the doctors’ office from 10:15 AM till about 1:30 PM. I was able to go to the Cafeteria in between tests and the doctors’ appointment to…

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Disabled Fighting

By pwsadmin / September 30, 2021 /

—Disabled Fighting— Twice in my life have I seen a man beating up on his girlfriend or wife.Both times were at concerts, and both times I had a friend with me.Also, both times I walked over to intervene.Each time, my friend pulled me back, and he went over and intervened.Later I’d hear them say, “You…

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Health Update

By pwsadmin / September 17, 2021 /

To All Who Keep Up with My Health I got to the heart doctor at 9:45 AM. The place was busy, but they had it under control because right at 10:00 AM, they called me back. My nurse asked me if I had drunk anything with Caffeine this morning. I said, “Um, yeah. Lots. I’ve…

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Dragging

By pwsadmin / September 16, 2021 /

—Dragging— I woke at 6 AM CST. This morning. I sleep with a nighttime urine bag.It holds 4000cc of output and has a good 6-foot hose that runs from the bag to my Urostomy, “Squiggy.” I drag myself out of bed. Say “Ouch” several times as I get up and head into the Kitchen.My bag…

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Health Update

By pwsadmin / September 15, 2021 /

To Family and Friends Who Keep Up with My Health: I’ve written about my fast heart rate in the past. My heart beats at around 110bpm.It’s been that way for as long as I can remember.My Primary Care Physician (PCP) want’s me to get it checked out since I am now 45 and very soon…

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Crowd watching a band

Old Memories

By pwsadmin / September 15, 2021 /

—Old Memories— I know it’s hard to believe, but there was a time when Cell Phones didn’t have cameras.In fact, there was a time when people did not have Mobile Phones.— We called them “Mobile Phones” in the beginning. Just “Mobile” if you were “Cool.”Example: “You got your mobile on you?” (I always had to…

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Closeup of horse’s head 

Ridin’ A Horse

By pwsadmin / August 13, 2021 /

—Ridin’ A Horse— When I became an older teenager, I received an artificial sphincter muscle.That artificial sphincter muscle was a game-changer for me and my life. It works like this:It “Crimps” the Urethra shut, much like crimping a garden hose to stop the water from leaving the hose.With the Urethra “Crimped,” I don’t Pee on…

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Convatech and Hollister banner

A Day In The Life

By pwsadmin / August 7, 2021 /

—A Day In The Life – Ostomy Care— When I started “Walking with Spina Bifida,” I wanted to tell about the “Normal” everyday life of someone disabled. The Good, The Bad, The Ugly. A “Tell All” of my life and what I deal with daily. I’ll go ahead and tell you now to scroll past…

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Urine Not Looking Good

By pwsadmin / July 10, 2021 /

First off, I feel fine.I am not running a fever, either. Today, this morning, really, my urine looked real bad. Like “Pet Milk.”It’s normal for me to have pus or mucus in my urine. (At least, that is what it looks like)Today, however, my urostomy bag looks like a bag full of Pet Milk. Since…

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