Read My Personal Account of Life With Spina Bifida

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Dandridge TN. – Can’t Sleep

By pwsadmin / July 15, 2021 /

It’s 3:30 AM When I awake. My left arm is killing me, and I immediately feel the old familiar Hip Pain as well as Spinal Cord pain. I try to be as quiet as I can and get out of bed. The only thing that will help this pain go away is walking around or…

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Mt. Airy Trip – Day 1

By pwsadmin / July 14, 2021 /

We made our way to Dandridge, TN., today. I know that’s where we are because I asked my phone, “Okay, Google, Where am I?”My Smartphone replied, “You’re in Dandridge, TN.” We left the house around 10 AM CST, headed as close to Mt. Airy, NC., as we could get before wearing ourselves out. —Apparently, that…

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T-Minus 13:00HRS Till Trip

By pwsadmin / July 14, 2021 /

—Packing For Trip— Since I have the most luggage to pack, my Aunt and Uncle drove over and let me pack my supplies first. I left the medical supplies that I will need for tonight and tomorrow morning out. I also left my laptop since I carry it in a bag and pretty much keep…

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Countdown To Trip

By pwsadmin / July 13, 2021 /

—T-Minus 24:00 — In 24 hours, we should be on our way to Mt. Airy, NC. I have double and triple-checked my medical supplies to ensure I have everything I will need. Still, I’m a bit anxious. It’s because I’m worried I will forget something. For example, and I use this example a lot, I…

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New Luggage For Trip

By pwsadmin / July 12, 2021 /

Happy early Birthday to me. The luggage that momma and Papa bought for my Birthday arrived today. I eagerly took it out of the box and began packing my new suitcase. I had some items in my old suitcase that I needed to take out.When I opened my old suitcase, a pamphlet was staring me…

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Trip Update 7/12/21

By pwsadmin / July 12, 2021 /

—Trip Update— I’ll be headed out on Wednesday the 14th for Mt. Airy, NC. I’ve bought additional medical supplies. Mom and Papa gave me an early birthday gift of some new, hard shell, rolling luggage. It’s the perfect gift. The luggage should arrive tomorrow, Tuesday, the 13th. I posted that my urine was looking poorly.I’ve…

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Urine Not Looking Good

By pwsadmin / July 10, 2021 /

First off, I feel fine.I am not running a fever, either. Today, this morning, really, my urine looked real bad. Like “Pet Milk.”It’s normal for me to have pus or mucus in my urine. (At least, that is what it looks like)Today, however, my urostomy bag looks like a bag full of Pet Milk. Since…

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7/9/21 Busy Day

By pwsadmin / July 10, 2021 /

I had a busy day today. Let me start by saying that my bedroom is my living space.It has a recliner, bed, TV, Handicapped Bathroom, etc. It also has many medical supplies stored in clear, 64-quart storage boxes that stack on top of one another. Also, it contains many things from my house in Huntsville,…

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Health Update 7/8/21

By pwsadmin / July 8, 2021 /

To All Who Keep Up With My Health: I posted that I’ve always had a fast heartbeat.But, on my last visit to my Primary Care Physician, my heart rate was in the ‘120’s Bpm. So, I got referred over to a heart doctor. I had that visit today. I had an EKG done today, and,…

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Mayberry Meet-Up 2021

By pwsadmin / July 7, 2021 /

Growing up, I didn’t get to do many things that young kids get to do. Things like Field Trips, Summer Camp, or even joining the Boy Scouts was out for me.It may have been my decision. But, to tell you the truth, I don’t remember.I do know that it would have meant me taking medical…

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