Read My Personal Account of Life With Spina Bifida

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Restless Night

By pwsadmin / May 20, 2021 /

I had a restless night last night. It wasn’t the bed, I promise. The bed is great. Very comfy, in fact. I have a tethered spinal cord, which goes hand in hand with Spina Bifida, and it can be pretty painful at times.Last night was no exception. It felt like someone had my Spinal Cord…

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Chattanooga

By pwsadmin / May 19, 2021 /

I had an excellent telehealth appointment with my doctor today.Isn’t telehealth medicine great?It is for me. After all, I have many doctors, and each one wants to see me around every three months. With telehealth medicine, I can have multiple appointments in one day.I can even have the appointments while on vacation.And, if nothing has…

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Best Western

By pwsadmin / May 19, 2021 /

I left the cabin early in the A.M. today and decided to stop off in Chattanooga to stay at a “Best Western.” I do so love the old drive-up motel rooms.—The kind where you pull right on up to the door of your room. I have a big bed, fridge, microwave, TV, and all the…

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Late Night Meal

By pwsadmin / May 15, 2021 /

I drove to an all-night diner tonight. It’s Friday night…—the place is packed. Being alone, I grabbed a seat up front. My waitress, “Ms. Becky,” was supposed to get off work at 9 PM.It’s now 9:15 PM EST. She’s talking to a co-worker as I sit down. “I guess I ain’t getting out anytime soon…

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You Can Walk?

By pwsadmin / May 14, 2021 /

You may or may not know, but I’ve had over thirty surgeries and procedures. I’d say the same surgical team performed the last ten. Many times, surgical students would “sit in” on my surgery.They are only there as an observer. There is one surgical student I remember well.We will call him “Travis.” “Travis” sat in…

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E.R. Visit

By pwsadmin / May 9, 2021 /

It’s 7 PM, Thursday, at one of the many hospitals in America. My doctor advised me to go to the E.R. because of kidney pain and high fever. The hospital is full of sick people. Not just the E.R., but the whole hospital is full up. There is not an available bed in the hospital.…

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First Memory

By pwsadmin / May 9, 2021 /

One of the first memories of my life on this earth was in 1980. I even know the day— October 7th. Mom had brought me home from daycare. My brother Tony met us in the driveway and wanted me to go with him over to the dog pens. Tony was one of my two brothers.…

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Frost Bite

By pwsadmin / May 9, 2021 /

Mom didn’t have an operator’s manual for her son, me, born with Spina Bifida. She and I had to figure it out as we went. A mom can scare the fire out of a child to get him or her to learn a lesson. And I think it’s a good tool for them to have…

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