Stories - Walking With Spina Bifida

Caroling at Christmas

By pwsadmin / December 21, 2024 /

I wasn’t much in the “Spirit of Christmas” this year.I thought this would be the worst Christmas of my Life. I had spent 19 days in a Coma, had Sepsis/Septic Shock, had lost the use of my lower legs, and I was now learning how to use a Wheelchair and Walker.Then, my Laptop went “Kapoot.”…

Updates

By pwsadmin / December 14, 2024 /

I’m adjusting to my “New” Body and home life.The pain in my lower body is excruciating. Both legs feel like they are submerged in buckets of ice and frozen solid. It’s constant pain, and I can’t take Gabapentin or Lyrica for it. My doctors and family believe that I will walk again.For now, though, I…

Coma Continued

By pwsadmin / December 11, 2024 /

After getting to the ICU, in a Coma,’ I was diagnosed with NASH, UTI, Double Pneumonia, Ammonia poisoning, and COVID. A breathing tube was inserted. And this is where I would lie for the next fifteen days or so. I would also go in and out of consciousness. The doctors told my Mother that I…

Coma

By pwsadmin / December 9, 2024 /

Scared.In one word, Scared.Like a little kid who thinks the boogey monster lives under his bed. I’m scared.Just standing up with my Walker feels like I’m on top of the Empire State Building.Panic Attacks happen hourly. But first, I need to explain what happened to me. Around Halloween, the 28th or so, my body developed…

Medical-Induced Coma

By pwsadmin / November 21, 2024 / Comments Off

I woke in the middle of the afternoon. I knew I wasn’t where I was supposed to be. I looked up and saw white fluorescent lights. It seemed like this time, I had been brought into the hospital and put into a medically-induced coma. My brother Robby comes over to me as the first to…

Dance

By pwsadmin / September 22, 2024 / Comments Off

In October 2001, my mom gave me a special gift for my birthday.The 9/11 Attacks had just happened, and the Nation, even the World, was “Out Of Sorts.” People were Scared.Many Young Adults said 09/11/2001 was the day they lost their innocence.I had already lost my innocence but could relate to them. Before giving me…

The Passenger

By pwsadmin / August 29, 2024 / Comments Off

—The Passenger— It was late at night.I couldn’t sleep. Since I couldn’t sleep, I drove to the Gas Station at the bottom of the hill to get two Gatorades. My body had been craving Gatorades since April, and I’ve been giving it what it craves. At the Station, I walk in.The place is empty. I’m…

8/25/24

By pwsadmin / August 26, 2024 / Comments Off

I haven’t posted my Journals lately.Why? Because I was waiting on some good news to report. When my doctor changed out the Stents in my Kidneys, he took a Urine Sample.You may remember that I keep an Infection, and the goal is to keep the Infection “Under Control.”The Urine Sample came back saying that my…

A Tourist in Fultondale

By pwsadmin / August 18, 2024 / Comments Off

Sorry for the late post.I enjoyed being a “Tourist” in my Hometown.In fact, it may become a regular thing. Once every Month or every other Month.For now, though, I’m back at home and resting. I have two more stories I’d like to tell about my visit, but I’m having trouble giving them the proper wording…

The Hometown Tourist

By pwsadmin / August 15, 2024 / Comments Off

It all started when we got a company to re-insulate the house.I knew the company was coming to take out the old insulation and install new insulation.Papa had chosen this Spray Foam type of insulation.The guys had been working for three days getting the old insulation out. Once they began spraying the foam insulation into…

Read My Personal Account of Life With Spina Bifida