Read My Personal Account of Life With Spina Bifida

Walking With Spina Bifida
Walking With Spina Bifida

My Baptism

By pwsadmin / June 7, 2021 / Comments Off on My Baptism

Twenty-Six years had passed since I had gotten Saved. I had now graduated college and received my Microsoft, Novell, and CompTIA certifications. I had gotten put on disability by my doctor from my career as an I.T. Manager. My grandmother, “Nana,” had passed away with brain cancer. “Tony,” my brother, had passed away at 38…

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Tommy The Dawg

By pwsadmin / June 6, 2021 / Comments Off on Tommy The Dawg

We have a black Dawg (You have to spell it that way…) named “Tommy.” Tommy is a Black Lab mix. We’re not sure what type of dog he is mixed with. Well, Tommy saw his reflection in the window this morning. For ten minutes, I watched him argue, by barking, with the “Other” dog that…

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Walking With Spina Bifida

Chapters

By pwsadmin / June 5, 2021 / Comments Off on Chapters

I think that life comes in chapters. I have many chapters behind me already. When I get asked about something from my past, I have to think about what chapter they ask. “Was that before, during, or after I lived in Virginia? Was that before 9/11? Was Nana still alive then? Was that before Tony…

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Walking With Spina Bifida

—Heart Health Update—

By pwsadmin / June 4, 2021 / Comments Off on —Heart Health Update—

To all my family and friends who keep up with my health: You may remember me posting that my heart rate has gotten elevated lately. I think it might be stress-related. Life is stressful.I’ve always had a fast heart rate that stays around 110bpm. At the doctor’s office, however, it was at 127bpm.The doctor kept…

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Walking With Spina Bifida

—6/3/2021—

By pwsadmin / June 3, 2021 / Comments Off on —6/3/2021—

—6/3/2021— An excellent day today! Yesterday, I drove to the local “Piggly Wiggly” grocery store and bought everything to make BBQ’d lil’ smokies. I got the recipe from my Aunt years ago. I cut up one sweet Vidalia Onion, one Bell Pepper and combine those, in the crockpot, with two packages of lil’ smokie weenies.…

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5/30/21

By pwsadmin / May 31, 2021 / Comments Off on 5/30/21

—5/30/21— I had a great day today. I got up before daybreak and began moving around. My Church had outside services today. I left the house by 8 AM to get there early. The weather was overcast and cool. It reminded me of being in the great “Smoky Mountains.” I set my chair up and…

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Walking With Spina Bifida

A Frog Named Red

By pwsadmin / May 27, 2021 / Comments Off on A Frog Named Red

—A Frog Named Red— Watching someone you love go from healthy to death in a mere six months is hard. Losing a loved one is hard. My Grandmother, “Nana,” had been diagnosed with cancer and given six months to live. Each day, “Papa” and I would drive from Huntsville, Ala., down to Nana and “Pawpaw’s”…

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PCP 6 Month Check-Up

By pwsadmin / May 27, 2021 /

I did go to my Primary Care Physician today for my six-month check-up. My heart rate has always been fast. Even as a teenager.My Primary Care Doctor has been keeping a close check on my heart for several years.I even remember wearing a heart monitor. Anytime I’m in the hospital, my heart rate is about…

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Naming My Ostomies

By pwsadmin / May 24, 2021 / Comments Off on Naming My Ostomies

Many people with disabilities eventually end up getting either a colostomy or a urostomy.—I ended up getting both. While I was in the hospital, recovering from my urostomy surgery, the wound care nurse came in and asked me if I had named my newly installed urostomy yet. “I didn’t know I was supposed to.” “You…

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Walking With Spina Bifida

Peein’ Blood

By pwsadmin / May 23, 2021 / Comments Off on Peein’ Blood

—Funny Story Many years ago, I received an artificial sphincter muscle.The surgery was successful, and the artificial sphincter muscle was a big game-changer for me. Shortly after the surgery, I was sent home with a Foley catheter inserted in my urethra. The Foley catheter was connected to a Nighttime Urine bag. The urine bag had…

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