Spina Bifida

Dragging

By pwsadmin / September 16, 2021 / Comments Off on Dragging

—Dragging— I woke at 6 AM CST. This morning. I sleep with a nighttime urine bag.It holds 4000cc of output and has a good 6-foot hose that runs from the bag to my Urostomy, “Squiggy.” I drag myself out of bed. Say “Ouch” several times as I get up and head into the Kitchen.My bag…

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Health Update

By pwsadmin / September 15, 2021 / Comments Off on Health Update

To Family and Friends Who Keep Up with My Health: I’ve written about my fast heart rate in the past. My heart beats at around 110bpm.It’s been that way for as long as I can remember.My Primary Care Physician (PCP) want’s me to get it checked out since I am now 45 and very soon…

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Walking With Spina Bifida

Old Memories

By pwsadmin / September 15, 2021 / Comments Off on Old Memories

—Old Memories— I know it’s hard to believe, but there was a time when Cell Phones didn’t have cameras.In fact, there was a time when people did not have Mobile Phones.— We called them “Mobile Phones” in the beginning. Just “Mobile” if you were “Cool.”Example: “You got your mobile on you?” (I always had to…

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Walking With Spina Bifida

Ridin’ A Horse

By pwsadmin / August 13, 2021 / Comments Off on Ridin’ A Horse

—Ridin’ A Horse— When I became an older teenager, I received an artificial sphincter muscle.That artificial sphincter muscle was a game-changer for me and my life. It works like this:It “Crimps” the Urethra shut, much like crimping a garden hose to stop the water from leaving the hose.With the Urethra “Crimped,” I don’t Pee on…

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Walking With Spina Bifida

A Day In The Life

By pwsadmin / August 7, 2021 / Comments Off on A Day In The Life

—A Day In The Life – Ostomy Care— When I started “Walking with Spina Bifida,” I wanted to tell about the “Normal” everyday life of someone disabled. The Good, The Bad, The Ugly. A “Tell All” of my life and what I deal with daily. I’ll go ahead and tell you now to scroll past…

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Urine Not Looking Good

By pwsadmin / July 10, 2021 / Comments Off on Urine Not Looking Good

First off, I feel fine.I am not running a fever, either. Today, this morning, really, my urine looked real bad. Like “Pet Milk.”It’s normal for me to have pus or mucus in my urine. (At least, that is what it looks like)Today, however, my urostomy bag looks like a bag full of Pet Milk. Since…

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Walking With Spina Bifida

Spina Bifida and The Outhouse

By pwsadmin / July 2, 2021 / Comments Off on Spina Bifida and The Outhouse

Being born with Spina Bifida, I wore a diaper for a good bit of my life.As a result, my restroom usage was a lot different than most other people.Meaning I don’t use the restroom in the same manner others do. I admit that I was born in the age of indoor plumbing.That’s what I got…

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