Read My Personal Account of Life With Spina Bifida
—Packing For Trip— Since I have the most luggage to pack, my Aunt and Uncle drove over and let me pack my supplies first. I left the medical supplies that I will need for tonight and tomorrow morning out. I also left my laptop since I carry it in a bag and pretty much keep…
Read More—T-Minus 24:00 — In 24 hours, we should be on our way to Mt. Airy, NC. I have double and triple-checked my medical supplies to ensure I have everything I will need. Still, I’m a bit anxious. It’s because I’m worried I will forget something. For example, and I use this example a lot, I…
Read MoreHappy early Birthday to me. The luggage that momma and Papa bought for my Birthday arrived today. I eagerly took it out of the box and began packing my new suitcase. I had some items in my old suitcase that I needed to take out.When I opened my old suitcase, a pamphlet was staring me…
Read More—Trip Update— I’ll be headed out on Wednesday the 14th for Mt. Airy, NC. I’ve bought additional medical supplies. Mom and Papa gave me an early birthday gift of some new, hard shell, rolling luggage. It’s the perfect gift. The luggage should arrive tomorrow, Tuesday, the 13th. I posted that my urine was looking poorly.I’ve…
Read MoreFirst off, I feel fine.I am not running a fever, either. Today, this morning, really, my urine looked real bad. Like “Pet Milk.”It’s normal for me to have pus or mucus in my urine. (At least, that is what it looks like)Today, however, my urostomy bag looks like a bag full of Pet Milk. Since…
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I had a busy day today. Let me start by saying that my bedroom is my living space.It has a recliner, bed, TV, Handicapped Bathroom, etc. It also has many medical supplies stored in clear, 64-quart storage boxes that stack on top of one another. Also, it contains many things from my house in Huntsville,…
Read MoreTo All Who Keep Up With My Health: I posted that I’ve always had a fast heartbeat.But, on my last visit to my Primary Care Physician, my heart rate was in the ‘120’s Bpm. So, I got referred over to a heart doctor. I had that visit today. I had an EKG done today, and,…
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Growing up, I didn’t get to do many things that young kids get to do. Things like Field Trips, Summer Camp, or even joining the Boy Scouts was out for me.It may have been my decision. But, to tell you the truth, I don’t remember.I do know that it would have meant me taking medical…
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—The Space Shuttle Challenger— On January 28th, 1986, Mom, Nana, and I gathered around the TV to watch the launch of the space shuttle “Challenger.” I had broken my leg in two places while riding my BMX bike and had to stay home and get homeschooled for six weeks.My instructor had left for the day,…
Read MoreTo all who keep up with my health: I posted that my blood sugar had gotten out of whack last week. I went to my diabetes doctor (Endocrinologist) for them to do blood work. My doctor doubled the units of insulin I take in the morning.Then, I take 14 units of fast-acting insulin (Humalog) before…
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