Read My Personal Account of Life With Spina Bifida

Walking With Spina Bifida
Walking With Spina Bifida

Mt. Airy – Day 1

By pwsadmin / July 20, 2021 / Comments Off on Mt. Airy – Day 1

—The Mayberry Motor Inn – Day 1— We have arrived at “The Mayberry Motor Inn” in Mt. Airy, North Carolina. I quickly went to the front desk, signed in, and backed our vehicle up to the door of our room for easy unloading. Within 30 minutes, we were unpacked and felt right at home. The…

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Dandridge TN. – Can’t Sleep

By pwsadmin / July 15, 2021 / Comments Off on Dandridge TN. – Can’t Sleep

It’s 3:30 AM When I awake. My left arm is killing me, and I immediately feel the old familiar Hip Pain as well as Spinal Cord pain. I try to be as quiet as I can and get out of bed. The only thing that will help this pain go away is walking around or…

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Walking With Spina Bifida

Mt. Airy Trip – Day 1

By pwsadmin / July 14, 2021 / Comments Off on Mt. Airy Trip – Day 1

We made our way to Dandridge, TN., today. I know that’s where we are because I asked my phone, “Okay, Google, Where am I?”My Smartphone replied, “You’re in Dandridge, TN.” We left the house around 10 AM CST, headed as close to Mt. Airy, NC., as we could get before wearing ourselves out. —Apparently, that…

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T-Minus 13:00HRS Till Trip

By pwsadmin / July 14, 2021 / Comments Off on T-Minus 13:00HRS Till Trip

—Packing For Trip— Since I have the most luggage to pack, my Aunt and Uncle drove over and let me pack my supplies first. I left the medical supplies that I will need for tonight and tomorrow morning out. I also left my laptop since I carry it in a bag and pretty much keep…

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Countdown To Trip

By pwsadmin / July 13, 2021 /

—T-Minus 24:00 — In 24 hours, we should be on our way to Mt. Airy, NC. I have double and triple-checked my medical supplies to ensure I have everything I will need. Still, I’m a bit anxious. It’s because I’m worried I will forget something. For example, and I use this example a lot, I…

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New Luggage For Trip

By pwsadmin / July 12, 2021 / Comments Off on New Luggage For Trip

Happy early Birthday to me. The luggage that momma and Papa bought for my Birthday arrived today. I eagerly took it out of the box and began packing my new suitcase. I had some items in my old suitcase that I needed to take out.When I opened my old suitcase, a pamphlet was staring me…

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Trip Update 7/12/21

By pwsadmin / July 12, 2021 / Comments Off on Trip Update 7/12/21

—Trip Update— I’ll be headed out on Wednesday the 14th for Mt. Airy, NC. I’ve bought additional medical supplies. Mom and Papa gave me an early birthday gift of some new, hard shell, rolling luggage. It’s the perfect gift. The luggage should arrive tomorrow, Tuesday, the 13th. I posted that my urine was looking poorly.I’ve…

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Urine Not Looking Good

By pwsadmin / July 10, 2021 / Comments Off on Urine Not Looking Good

First off, I feel fine.I am not running a fever, either. Today, this morning, really, my urine looked real bad. Like “Pet Milk.”It’s normal for me to have pus or mucus in my urine. (At least, that is what it looks like)Today, however, my urostomy bag looks like a bag full of Pet Milk. Since…

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Walking With Spina Bifida

7/9/21 Busy Day

By pwsadmin / July 10, 2021 / Comments Off on 7/9/21 Busy Day

I had a busy day today. Let me start by saying that my bedroom is my living space.It has a recliner, bed, TV, Handicapped Bathroom, etc. It also has many medical supplies stored in clear, 64-quart storage boxes that stack on top of one another. Also, it contains many things from my house in Huntsville,…

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Health Update 7/8/21

By pwsadmin / July 8, 2021 / Comments Off on Health Update 7/8/21

To All Who Keep Up With My Health: I posted that I’ve always had a fast heartbeat.But, on my last visit to my Primary Care Physician, my heart rate was in the ‘120’s Bpm. So, I got referred over to a heart doctor. I had that visit today. I had an EKG done today, and,…

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